Monday, October 13, 2008

It's Not Easy To Be Me.

It's Not Easy To Be Me. , Five For Fighting I can't stand to fly I'm not that naive I'm just out to find The better part of me I'm more than a bird: I'm more than a plane More than some pretty face beside a train It's not easy to be me Wish that I could cry Fall upon my knees Find a way to lie About a home I'll never see It may sound absurd: but don't be naive Even Heroes have the right to bleed I may be disturbed: but won't you concede Even Heroes have the right to dream It's not easy to be me Up, up and away: away from me It's all right: You can all sleep sound tonight I'm not crazy: or anything: I can't stand to fly I'm not that naive Men weren't meant to ride With clouds between their knees I'm only a man in a silly red sheet Digging for kryptonite on this one way street Only a man in a funny red sheet Looking for special things inside of me It's not easy to be me. In no way do I believe I'm comparable to a superhero still the encouraging words from so many make it sound like I'm something special. This is hard to stomach when my eyes see the core of my heart which exposes an ugliness that is rarely revealed. I'm thankful, grateful and touched by the words and most cause tears. I don't know how to be me. Just months ago my independence was not in question and I though nothing of the things I did on a daily bases. Today my daily activities are dependent on others, my schedule is not my own and independence looks like getting my own drink out of my dorm refrigerator. It's not easy to be me. It's not easy to be you. What is it like to be you? To look at me, the once independent person, rely on you for everything. To wait on me from dawn to dusk. To have our fun and adventure days altered to something more subdue; something with less zeal. My ability to adapt is slow, what about for you who deal with me and my loss of independence? I assume the ability for you to adapt is equally challenging. I have no idea what it's like to be you and my mind wanders to feelings of guilt, pity and sorrow. I think about it often enough and I don't know who has it worse: me, or you. So who's the strong one? Who's the real superhero? Not me. The ones deserving the praise, the real superheros is everyone who's done even one of the countless, endless acts of service.

Wednesday, October 8, 2008

Tonight: I cry.

Why? Is it because... my legs are lame, my "void" are annoyingly out of my control, my lower back is in pain with most movement, my hair is abandoning its relationship with my scalp, my swollen feet resemble something like water balloons, I have to reposition my wheelchair 4 times before I can reach something a foot in front of me, my face looks like a cherry tomato, (maybe not as red as I've been saying but it is pudgy!), my taste buds are fickle, my right eye needs to be patched at night so it doesn't dry out, my arms struggle to lift my 110lb body, most of my daily activity requires someones assistance? Tonight I cry because I'm human & in my humanity I still know that I'm created in the image of Jesus.

Monday, October 6, 2008

Thank You.

For every prayer said on my behalf; every gift card; every book; every flower arrangement; every card; every call; every email; every blog comment; every visit; every care giving act; thank you for every selfless act that touches my heart in ways I can't express in words. Thank you. :)

More Laughter.

The radiation to my head has dried out my face and I look like I'm sunburned. "To bad it's not closer to Halloween, I could put a green stem on my head and go as a cherry tomato", I said to the RT techs. To which Mr. Personality (the one that had to have my sister lift me onto the RT bed on day one) replied, "Oh, you'll be red for weeks!" Good to know I'll look like a cherry tomato for weeks!! You just have to laugh.

Saturday, October 4, 2008

We Chose to Laugh.

Perhaps this is another "TMI" overshare ... still I hope it finds you laughing :) My "voids" are outside the realm of my control and this could be on account of new tumors growing (that's not the laughing part). With that, I believe that man has done all he can for me and this is where God takes over. This is not to say he hasn't been a part of mans work too...his hand is in all of this. More on that later. SO...the choosing to laugh. Last night after my attempt to "void", before getting my pj's on, in the quietness I was startled by a strange noise. "What's that noise?" I asked Cathy. It was me peeing in the commode! I didn't even know I was peeing! Hilarious! Who gets startled by the sound of their own pee!?! We just laughed.

Friday, October 3, 2008

Week 3 of Chemo - FINISHED.

The pill bottle is empty and my chemo is finished. Monday is the last day of radiation, yeah! Overall my body has been doing fine with the exception of sleepless nights which wipe me out; no sleep would wipe anybody out. I'm looking forward to another relaxing weekend.

Wednesday, October 1, 2008

For the Highly Intelligent.

There comes a time in our live when we embrace our wits and boast. This is that time for me; I'm compelled to share these links with you - the links to sophisticated brain exercise. I can not presume to think that everyone will be up for the challenge however I've found these to be most invigorating. Good Luck. Brain Challenge #1. Brain Challenge#2.