Tuesday, September 30, 2008
Gamma Knife Surgery.
Is the name of the procedure I started today. It's a strange name for RT. There is no knife, it simply direct RT to the tumors.
On day one of RT they create a mesh mask of my face which today the snapped me under to hold my face TIGHT to insure the precision of the treatment. When I put the mask on I asked the RT tech how do I breath - he told me slowly! Good advise. I breathed slowly. The process is only a few minutes and bearable - I have 4 days of this and my RT is done.
Monday, September 29, 2008
My contribution to comfortable bird's nests.
SO... my hair which was doing all it could to stay attached to my head has lessened its hold. The good news is is that my hair will make nice for a birds nest, yes?
All that to say, Alli, the super nice nurse at the RT office told us that the ACS has wigs for free. I was thinking bald is beautiful (which it is) but wigs are wonderful, no? SO, for fun we went to the ACS office and I found a fun little wig...for free!
It's only Monday and my hair follows me everywhere. I'm hoping to wait until the weekend to shave it...
Getting the tires out :)
The Jim Brinkman concert could not have been any more perfect :). The wheels enjoyed the show and well I guess we did too!
The next adventure was Meijer's on Saturday shopping for the mixings for an amazing chicken stir fry compliments of chef Dan. Of course our spree took 3 hours which pushed back the dinner time not to mention he cooked for 8! Everything was excellent -- how lucky am I too be surrounded by amazing chefs?!?! If my meals were up to me they'd be cereal, toast and popcorn ... with cookies as appetizers ;)
Friday, September 26, 2008
Hot wheels.
I have to admit that I have been challenges with getting acquainted with the wheelchair. Which means getting out and about in a wheelchair is so foreign to me that I've practically succumb to not going out. All that to say that tonight, I'm taking the hot wheels out and going to see Jim Brinkman in concert. This I'm sure of - my comfort zone will be stretched and the stretching will open my zone for more opportunities.
Week 2 of Chemo - FINISHED.
With little to none side effects at all.
I did however brush out a fair amount of hair this week but I still have more hair on my head that was in the brush.
Tuesday, September 23, 2008
No More Tears :)
Not that I really was crying...come on!! Ha.
I don't recall getting the best sleep lasst night however today was a much better day dispute lack of zzzzz's. My arm is feeling much better today, thank you for answered prayers.
This world I reside in is enormous yet the support that is pouring into my life has me believe that this vast world revolves around me. I do not mean this in a self-centered way ... I'm overwhelmed with gratitude from the continued support that is coming from corners of my life that I haven't looked to in years. Yes, specifically I'm sending a shout of to the HS buddies that have reached out from their busy worlds to send support and prayer, THANK YOU!
Thank you to everyone who has walked this journey with me from Bangkok to St. Charles and thank you to everyone who has joined this walk along the way. I hope we are equally blessed by this walk together and I pray that this journey blesses the lives of those around us.
Thank you, thank you, thank you!
Monday, September 22, 2008
"I'll give you something to cry about."
In other words, things could always be worse.
Today was more challenging than other day in regards to my energy which seems to decrease with the chemo. That could be enough to cry about, yes?
But the worse is this unexplainable discomfort in my left arm that starts with pins and needles in my hand with shooting sharp pains in my forearm and bicep.
This pain is enough to interrupt the desire I had to rest this evening and I fear a restless night is in front of me :(
If only...my arm didn't hurt than I could deal with the lack of energy...but really? I'm sure I'd be crying over something else...
boo, hoo, hoo.
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